Coats Plus Foundation Selects Bublup to Power Private Family Support and Research Collaboration

The Coats Plus Foundation, a nonprofit dedicated to supporting families affected by this ultra-rare genetic disorder, has selected Bublup as its secure digital platform for content organization, private community spaces, and research resource sharing. With a mission to empower families and accelerate understanding of Coats Plus Syndrome, the foundation will use Bublup to create a private, structured environment for connection and collaboration.

  • How it Started

    The partnership began following a meeting at the NORD 2025 Conference in Washington, DC, where the foundation’s leadership explored how Bublup’s secure, HIPAA-compliant infrastructure could serve both families and researchers. The result is a tailored platform designed to support the evolving needs of this small but deeply connected community.

  • An Ideal Platform for our Family- and Research-focused Ecosystem

    “Our mission is to improve the lives of individuals and families impacted by Coats Plus Syndrome by providing support, promoting awareness, and driving research,” said Bryan Docobo, Co-Founder of the Coats Plus Syndrome Foundation. “Bublup’s privacy-first, easy-to-use platform aligns perfectly with that mission. it is helping us build a safe and supportive space for affected families while also streamlining how we organize and share research efforts with our medical advisors and global partners.”

  • A Visual and Private Place for Integrated Content and Community Management

    Bublup allows the foundation to structure its resources using visual folders that contain everything from genetic research and clinical trials to caregiver stories and educational tools. The platform also supports private chat and discussion forums, creating disjoin spaces for researchers, enabling connection among families, experts, and advocates while maintaining strict data privacy standards!

  • Bublup's Goal is to Empower Non-Profits and Rare Disease Communities

    “We’re honored to support the Coats Plus Syndrome Foundation in building a digital home that brings together research and community,” said Alain Cohen, CEO of Bublup. “Helping rare disease communities organize, engage, and scale their impact—without the burden of complex IT systems—is exactly why Bublup was created." The Coats Plus Syndrome Foundation joins a growing network of rare disease organizations using Bublup to centralize trusted content, foster meaningful connections, and save time through tools like RSS-driven research feeds and AI-powered summaries. Bublup’s HIPAA-compliant and SOC 2–certified infrastructure ensures privacy and security for health-related data, making it especially well-suited for rare disease organizations looking to build trust-based communities and data-rich knowledge hubs.

About Us

  • About Coats Plus Foundation

    The Coats Plus Foundation is dedicated to combating Coats Plus Syndrome, supporting affected individuals, funding research, and raising awareness. They aim to enhance the quality of life for those impacted and work towards finding a cure. The foundation invites support to help battle telomere disease and offers avenues for communication and assistance.

  • Bublup

    Bublup is a private, enterprise-grade digital ecosystem to engage and grow online communities. Hallmarks of the platform include: Multi-modal communication with chats, forums, feeds; and resources; AI-Driven content management; and a visual, intuitive environment. Trusted by non-profits, advocacy groups, businesses, and creators, Bublup provides secure, HIPAA- and SOC 2 Type II–certified collaboration.